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Living with MSA (Multiple System Atrophy)

Changes to Life

1/26/2020

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My blog (in  the past: Days Gone By) has referred to things I can no longer do or products that are no longer available:


Now in a wheelchair, I find life much different than with my walker. I still use the walker at nights, or when I NEED to stand. I feel fortunate to have that option.
Pros to Wheelchair
• don't have to pull up a chair
• waiting (in line, for bus etc) no longer concerns being seated
• unlike walker, gained two hands and a lap (foot propel)
• can  take my  chair anywhere and sit in the sun
​• people are helpful as you are obviously disabled
• felt much safer, less danger of falls, slipping

Cons  to Wheelchair
• 
FCSS can't take people out that are in wheelchairs
• snow, which I didn't have a problem with before, is now a "show-stopper"
• questions like "you look fine, why are you in a wheelchair"  Me resisting answering, "just lucky, I guess" "none of your business" "feeling lazy today"

• tiny aisles, high thresholds (limiting access to spaces) and not being able to go to places I used to frequent... And don't get me started on doors and bathrooms...
• due to inactivity, you gain weight, especially around the middle. Originally got for "long distances", started using daily
​
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    Kathy White was diagnosed with MSA-C in Jan 2005. The creator is not a doctor or health care professional. This site reflects her own opinions and experiences.

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