It's been a long time since I posted.
My daughter comes monthly with groceries, change sheets, to do chores. It's a regular routine, so I am much more comfortable with asking for help. I order the groceries online, so they are all paid for. I bought her a folding wagon to haul them.
I keep a "To-Do" list on the fridge or leave items on the table to remind me.
I have a new toy!
Given some resistance bands. Presently using one on my bathroom grab bar.
Looks like it may replace the need for the gym, the weight machines, etc.
That puts me in a doorway, apartment centre, and I can use while watching TV.
Seems to be great. Presently working out something for both upper and lower body.
Gym is now open. IF you weren't at high risk. IF you wish to book a 45 minute appointment. IF you don't mind wearing a wet bathing suit home. IF the handibus wasn't on "essentials only". IF you could buy/manage a bottle of hand sanitizer...
The list goes on and on. Definitely not the right place for me.
While this may all seem overwhelming, it doesn’t need to be. Complete some basic preparations such as having a supply of non-perishable foods, medical supplies, prescription and other medications, and other necessities.
Wash your hands and cover your cough, and ask those around you to do the same. Practice social distancing.
This pandemic has shown a few "silver linings":
My doctor is suddenly doing prescriptions by phone. Long been a pet peeve. I no longer have to book/pay for handibus, go in, wait for hours, hand over a note to have Rx refilled, and another note to fax Rx to pharmacy and call the handibus for return home. Deja vu?
Streets and apartment building are quieter.
Companies that have always claimed to be inaccessible by email are suddenly flooding my inbox with corporate names and addresses (email contacts). Local businesses are blossoming online, too. It is a whole new world available at the click of my mouse. Dare I hope this on-line trend continues?
Doing well selling/downsizing with Kijiji. Covid restrictions work well-- people pay by etransfer, then pick up outside door. Has eliminated "no shows" and "looky-loos" as the item is already paid for. And I can email buyers that I can't do "try-ons and looks", as AHS does not permit garage sales.
Well, COVID-19 certainly has changed a lot of things.
My carefully-constructed "house of cards" has been blown to hell. Years of ideas and solutions... poof!
Managing the needs of a pandemic is challenging, especially in a wheelchair with limited fine motor skills.
Even gloves/face masks and washing hands is difficult and time-consuming. Lots of good reasons to stay home...
Items may not be available, meaning a wasted trip or more deliveries. Both are hard on a limited budget.
Handibus is on essential service. Boy, that makes staying home easy.
Gym/pool is closed which means exercising at home.
FCSS support is cancelled. Very slowly clean, change bed, do dishes. Garbage piles up.
Library is closed. TV is re-run extraordinaire. Finding new ways to entertain myself.
Social media is dire, full of experts, wanna-be stars, scams and fix-everything cures
Finding it now a problem to get up from my wheelchair... to transfer, stand, etc.... I am now working on this issue. I took note of what muscles are used or "what hurts". I also tend to pitch forward, so ensure there is a grab bar, cupboard, table, etc. in front. When I find any movement difficult, I repeat it 10 times.
Also, with the standing thing, I found moving to the shallow end of pool edge, allows me to simulate the "getting up" process. Hurts in all the right places. "Squatting" while hanging on to pool edge, repeat 10 times. Also found that "walking" while hanging on, in the shallow end is difficult. Experimenting with standing (upper body out of water, no hanging on).
May also be useful to get out of recliner, bed, off couch...
Here's something I didn't know--people with MSA blink less. Plus people that stare at computer screens all day (like me) do too. A normal rate is 10-15 times per minute. The eye doctor suggested over-the-counter artificial tears, 3 times per day. Easy solution, but costly. I thought "if you don't blink enough, just blink MORE". I find adding those drops at night when I'm lying in bed is easier.
Here are other low or no cost ideas:
1. Warm washcloth compress.
2. Salmon--in this case, the omega 3 can improve the eye’s oil film, also is an anti-inflammatory.
3. Computer breaks. 20-20-20 rule: Every 20 minutes, spend at least 20 seconds looking at something 20 feet away.
4. Blink more. I have post-its stuck on fridge, computer screen, tv etc
I have added a MSA blog page to website www.kathyjwhite.com
Makes more sense than having 2 separate websites. Also switching providers, so things will be new and different and somewhat a "work in progress".
Found one online for an office chair... helps immensely! The "health/elderly" ones were too expensive. Revised my thinking to others who may sit a lot (truckers, office...)
Kathy White was diagnosed with MSA-C in Jan 2005. The creator is not a doctor or health care professional. This site reflects her own opinions and experiences.